Patient Engagement

ISMPP is committed to elevating the patient voice across the medical publication and communication ecosystem through transparency, inclusivity, and equitable partnerships.

Do you have any questions about using ISMPP’s resources to facilitate patient engagement in publications? Reach out to the ISMPP Patient Engagement Task Force today! Email: [email protected]

 ISMPP Patient Engagement Task Force

ISMPP’s Patient Engagement Task Force (PETF) has defined strategic objectives to guide meaningful collaboration between our professional community and patients.

The strategic objectives were informed by a survey of the ISMPP members and a workshop with the PETF members. Insights from these initiatives were presented at the ISMPP Annual Meeting 2025.

• ISMPP member survey on patient engagement in medical publications
  
  
• Patient engagement enabler poster
  
  

The PETF strategic objectives have shaped the resources below, designed to help you integrate the patient voice in publications.

• ISMPP PETF strategy summary slide deck

What is ISMPP's commitment to partnering with patients?

ISMPP recognizes the importance of genuine partnerships with patients—not just participation. Learn about our guiding principles for ethical, transparent, and meaningful engagement with patient partners, and patient membership opportunities.

• ISMPP’s patient partnership guiding principles – coming soon!
  
  
• Patient membership in ISMPP

What language should I use for patient engagement activities?

Effective patient engagement begins with clear communication. Use this curated lexicon, developed by the ISMPP PETF, to navigate the language of plain, respectful, and inclusive communication with patients, caregivers, and members of the public.

• Patient engagement lexicon

What resources are available to facilitate patient engagement?

Lots of great resources already exist to facilitate patient engagement in publications. Explore our roadmap of patient engagement assets designed to guide you through practical implementation of patient engagement, from planning to dissemination of data. From templates to case studies, these tools can help to support your goals every step of the way.

• Patient engagement resources

• Roadmap summarizing key steps/resources for patient engagement - coming soon!

How do I overcome key barriers and challenges to patient engagement?

Patient engagement is a journey with real-world challenges. Our enabler document offers guidance on identifying, understanding, and addressing key barriers, so you can foster more effective patient partnerships.

• Patient engagement enabler – coming soon!

How do I measure the impact of patient engagement?

Explore our repository of approaches and tools that will help you evaluate the impact and effectiveness of patient engagement initiatives.

• Impact metric tools

Where can I find key publications and resources on patient engagement?

Access our curated hub of key publications, webinars, newsletters, and thought leadership on patient engagement. Stay informed with perspectives from ISMPP and beyond.

In Plain Cite podcasts (previously named "InformED" podcasts, 2020-2024):

• The Power of Plain Talk
• Delivering Patient Centric Publications
  
• Patients as a Key Stakeholder for Scientific Conferences
• Putting Patients First: A Journey to Inclusion in Publishing
• Plain Language Summaries: Best Practice

 ISMPP U webinars:

• Integrating Patient Perspectives in Publications Planning: The What, How and Why
• Can Health Literacy Best Practices in Publications Fuel Innovation in Patient-friendly Electronic Package Information (ePI)?
• Patients in Focus: Redefining Scientific Conference Dynamics
• Engaging the Patient in APAC
• Plain Language Summaries (PLS) of Publications: Focus on Practical Application

 The MAP newsletter:

• A Company’s Approach to Developing Publication Plain Language Summaries
• Pressure in a Pandemic: Lessons for Communicating Scientific Research
• Rhetoric, Plain Language, and Effective Communication: An Insightful Dialogue
• Patient Authorship: Three Key Questions (& Answers!) for Medical Communication Professionals [Part A]
• Patient Authorship: Three Key Questions (& Answers!) for Medical Communication Professionals [Part B]
• What Is Health Literacy in Clinical Research Communications, and Why Is It Important?
• We Need to Talk about PLS…Exploring the Opportunities of Plain-Language Summaries

Who has been involved with developing ISMPP’s patient engagement strategy and tools?

Meet the dedicated members of the PETF who have shaped the future of ISMPP’s patient engagement efforts.

Adeline Rosenberg (Oxford PharmaGenesis & Patient Advocate), Alice Concepcion (AstraZeneca), Bradley Meehan (OPEN Health), Catherine Skobe (Co-Chair, Pfizer), Charlotte Majerczyk (Lumanity), David McNeel (Lovance), Dawn Lobban (Co-Chair, Amica Scientific), Ella Balasa (Patient Advocate), Emma Phillips (Costello Medical), Geraldine Drevon (GSK), Jakki James (Parexel), Jennifer Regala (Wolters Kluwer Health), Juliet Bell (Excerpta Medica), Junjun Liu (Eli Lilly), Kathleen Broderick (CSL Seqirus), Laura Dormer (Becaris Publishing), Leslie Moody (Puma Biotechnology), Maria McGill (The Lockwood Group), Mohammed Najeeb Ashraf (SciVoc Consulting), Nichola Gokool (Co-Chair, Parexel), Pippa Hadland (AstraZeneca), Pragati Sharma (Genentech), Sashi Nadanaciva (Daiichi Sankyo), Shweta Pitre (SIRO Clinpharm), Shweta Rane (Bridge Bio Phama), Simon Stones (Amica Scientific & Patient Advocate), Stephen Craig (Envision Pharma Group), Susan Scott (Scott Pharma Solutions & Patient Advocate), Swapna Ganduri (CACTUS Life Sciences), Tatiana Salazar (Cook Research), Trishna Bharadia (The Spark Global & Patient Advocate), Yosef Mansour (AstraZeneca)

All contents © 2025 International Society for Medical Publication Professionals, Inc. (ISMPP). ISMPP will grant limited permission to use materials developed by the Patient Engagement Task Force for personal, non-commercial use. Such use is permitted only if you accept all of the terms and conditions contained in this nonexclusive, nontransferable, limited license agreement. Please read this license carefully before using this material in any manner.

By using these materials, you hereby accept and agree that: use of the material, and their content, shall be for individual, personal, and non-commercial reference and use only; and the material shall be used only pursuant to the terms of this license agreement. The material, and their content, are proprietary information of ISMPP and/or the individual authors. The contents of the material may not, in whole or in part, be reproduced, copied, disseminated, or otherwise utilized, in any form or manner or by any means, except for individual, personal, and non-commercial reference and use.